Live every day, like it’s the last ❤

the ricks must be crazy'

I’ve been watching you for quite some time, but never comment. I understand you 100%. I have epilepsy, but a very intense tonic/clonic type of epilepsy. Each day and the moment I’m in is all I’m guaranteed. I was in a bad car accident years ago. Had to learn how to walk and talk again. It took 20 years for this brain injury to finally fester and turn into what I currently deal with. I had to stop touring and playing music professionally, but since then I have found the love of house design and building custom homes. I love your approach. I love how you see things. We are given this day and nothing more. This is the same for all of us, but some of us feel this more deeply and knowingly. All love from Vancouver Island, British Columbia, Canada.😊❤️

I’ve been watching you for quite some time, but never comment. I understand you 100%. I have epilepsy, but a very intense tonic/clonic type of epilepsy. Each day and the moment I’m in is all I’m guaranteed. I was in a bad car accident years ago. Had to learn how to walk and talk again. It took 20 years for this brain injury to finally fester and turn into what I currently deal with. I had to stop touring and playing music professionally, but since then I have found the love of house design and building custom homes. I love your approach. I love how you see things. We are given this day and nothing more. This is the same for all of us, but some of us feel this more deeply and knowingly. All love from Vancouver Island, British Columbia, Canada.😊❤️

btw I never forgot you, youtube just stopped suggesting your videos. sending love

I miss Claire so much

No way, the last time I watched you happened to be around when you started the medication. You popped into my thoughts again just in time for an update. It makes me so happy to see your improvement. 💕

I'm so happy to hear your getting better.i started watching during your van build cause I had one myself it was very interesting to watch a girl do this stuff.now I'm watching you screen the porch on your house and it looks great keep up the good work and keep on living…..peace

RIP Claire Wineland….

Oh wow!! I subscribed to you a few months ago as you popped up on my main YouTube feed randomly.
I lost my sister to CF in 2011
Worst day of my life!!
She called Coke her Vitamin C
And she thought it washed her mouth 👄 out well after meds.
She hated any healthy food.
The salt air at the beach is super good for your lungs unsure if you've heard that.
I literally wanna hug you and please know basically everything you said she would think too or say. We had lots of bleeds in public, I totally understand it. Once when we where little she had to spit out my side of the car over me and that damn golly came back in the window and landed on my dang face!! Your beautiful, your you, it's fucking hard but thank you for being real. I rebelled lots after she passed
And my second daughter is a carrier of the gene.
It's fucking brutal when your close or family.
Love light and blessings
❤️🌻

❤❤❤ I love that you have had such success with Trikafta!!!!
My husband has late onset CF and has mild lung issues but extremely severe digestive issues. He was on Trikafta for about a year and a half. Recently he had a 36 day hospital stay and is now on a feeding tube because he can’t even have water without having pancreatic attack. His Drs at the CF clinic took him off because they think the Trikafta was stimulating the pancreas (digestive system) to over produce.
The Drs are trying to figure it out to determine if it was the Trikafta or not. 💔

🤙🌻It pleases me to hear you're still with us. Have a better one!

WOW! What a horrible journey! But what a wonderfully strong young lady you are. I’m happy your health has improved so much and hope it continues indefinitely!

Great to know that the medical industry has finally found a way to treat CF. My niece passed away from CF at the age of 21. About 27 years ago. It was awful. I miss her! She lived her life to the best of her ability in her 21 years. God bless you! And Thank you for sharing this video. I’m gonna show this to my sister. My niece was her only daughter. She has a Son but he doesn’t have CF! Thank God.

Gday steffie just started watching your vids and wow awesome is all I can say. Like your dog as I also have a merema called Karma She can be a handfull but worth all the time it took to gain her respect. When we greet we touch noses and look in each other’s eyes and it’s chill time until she goes into guardian mode Stay safe

I Love your sweatshirt. I need one. People see me and think I'm faking…it's real and it hurts

You are so beautiful

Seeing you so healthy and happy is amazing. I lost a childhood friend two months after she began the medication, she had the best two months of her life but her lungs were just too damaged. It’s nice to see you thriving and imagine her feeling that wonderful ❤️

im a new sub, i adore you, your strength and all you are accomplishing. i think you voice is beautiful, you're beautiful ☺

Interesting, I just, the past few days thought about you, here you are!❤

Glad you are doing good, looking beautiful too

Missing you and pup,hope your ok, well🌹

Happy 28th birthday from the land of Trikafta, Miss Stephi. It seems the UK was up before their dawn with birthday greetings, too. And that spammer claiming to be you apparently was busy last night, too, which is a kind of compliment, really – the YouTubes of cuties get the fraudulent CONtact info, so you're in good company. Many happy returns of the day to you.

Happy birthday Stephi, lots of love from the UK 🇬🇧 ♥️

Come on we all knew that would go away you couldn’t keep it up forever